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The Childhood Arthritis and Rheumatology Research Alliance (CARRA) is a North American organization of pediatric rheumatologists who are committed to advancing the health and quality of life of children living with rheumatic disease and arthritis and who have joined together to answer critical clinical research questions. The mission of the alliance is to prevent, treat, and cure rheumatic diseases in children and adolescents through fostering, facilitating, and conducting high-quality research.

The CARRA Registry is a network of CARRA pediatric rheumatology research centers across North America dedicated to catapulting the field of pediatric rheumatology research to the level of performance necessary to realize dramatic improvements in the outcomes and quality of life for all children with rheumatic disease.

Through the creation of a unifying, scalable informatics infrastructure and the engagement of families, patients, and communities, The CARRA Registry will provide the opportunity for affected children at every CARRA clinical research site to participate in high-quality clinical and translational research.

The Childhood Arthritis and Rheumatology Research Alliance

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Your child may be eligible to participate in a research project collecting information and increasing the understanding of childhood rheumatic diseases.

The Carra Registry

As CARRAnet's inaugural project, the CARRA Registry is an observational retrospective and prospective cohort study that will enroll children and adolescents with major rheumatic diseases followed at participating study sites. All patients with defined rheumatic diseases who are 21 years of age or younger and who are seen/followed at a CARRA site for medical care will be approached for participation in the registry. The defined pediatric rheumatic diseases include:

  • Juvenile idiopathic arthritis (JIA)
  • Systemic lupus erythematosus (SLE)
  • Multiple connective tissue disease (MCTD)
  • Juvenile dermatomyositis (JDM)
  • Localized scleroderma (LS)
  • Systemic sclerosis (SS)
  • Vasculitis
  • Sarcoid
  • Juvenile primary fibromyalgia syndrome (JPFS)
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